All NIH-managed databases the HHS official's statement said
The HHS official did not say whether Bhattacharya initially misspoke or explain why his plan was reversed. Bhattacharya did not respond to a request for comment. HHS has not responded to a CBS News request for an interview with Bhattacharya about the registry.
Some $50 million will be invested in the research effort, which includes the data platform, the HHS official’s statement said, which is “aimed at understanding the causes of ASD [autism spectrum disorder] and improving treatments by leveraging large-scale data resources and fostering cross-sector collaboration.”
According to the official, the NIH still plans to explore partnerships with other federal agencies, including the Centers for Medicare and Medicaid Services, “to facilitate a comprehensive real-world health dataset that maintains the highest standards of security and patient privacy while supporting research into autism and other areas such as chronic diseases.”
In a statement to CBS News, the NIH said its “secure data repository” would “analyze large-scale, de-identified data” for autism and chronic diseases, similar to the agency’s cancer database. The autism research would “be fully compliant” with federal privacy laws and regulations, the agency said.
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