CBS News request Centers for Medicare and Medicaid MMC

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Bhattacharya did not respond to a request for comment. HHS has not responded to a CBS News request for an interview with Bhattacharya about the registry.

Some $50 million will be invested in the research effort, which includes the data platform, the HHS official’s statement said, which is “aimed at understanding the causes of ASD [autism spectrum disorder] and improving treatments by leveraging large-scale data resources and fostering cross-sector collaboration.”

According to the official, the NIH still plans to explore partnerships with other federal agencies, including the Centers for Medicare and Medicaid Services, “to facilitate a comprehensive real-world health dataset that maintains the highest standards of security and patient privacy while supporting research into autism and other areas such as chronic diseases.”

In a statement to CBS News, the NIH said its “secure data repository” would “analyze large-scale, de-identified data” for autism and chronic diseases, similar to the agency’s cancer database. The autism research would “be fully compliant” with federal privacy laws and regulations, the agency said.

“These efforts are not about tracking individuals. All NIH-managed databases follow the highest standards of security and privacy, with the protection of personal health information as a top priority,” the NIH said.

The HHS statement marks the latest change to Kennedy’s autism research effort in recent weeks, since he first announced the push at a White House meeting earlier this month.

Bhattacharya told reporters earlier this week that he anticipated grant funding for the autism research would “hopefully” be awarded by September. That is later than the initial timeline outlined by Kennedy, who has said that “by September, we will know what has caused the autism epidemic.”

“It’s hard to guarantee when science will make an advance. It depends on, you know, nature has its say,” Bhattacharya has said.

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